On March 11th we brought Carly into Children’s Hospital for an MRI & CAT Scan. Before we went to the Hospital our first stop was the Jimmy Fund. Carly needs to be sedated for the MRI so we had Margaret, her nurse, access her port because we figured it would be less traumatic with a nurse she knew and was comfortable with. While we were there we saw Amber & Amy DaRosa and the girls were so happy to see each other, we let them play for a while before her MRI appointment. This was Carly’s 5th MRI & 2nd CAT in a less than a year. Needless to say, Carly knew exactly what to expect and she fell asleep pretty quietly. The MRI took about 45 minutes and then the CAT was right after. It was a very long hour for Roy and I and even her oncologist came over to check things out. I think we made him a little nervous too.

Once the scans were complete we got an initial ok by her doctor, which eased our minds tremendously. I think both Roy & I were more nervous than we thought we’d be. But thankfully everything looks good. Over the past couple of weeks Carly’s general health has been so-so. Her legs hurt her a lot, especially at night, so her sleeping habits aren’t the best. We’ve been giving her morphine at least once a day and sometimes more. She has been able to go to school a couple of times. Carly has an appointment with the Pain Clinic at Children’s Hospital at the end of May and we are hoping they can help her out with the leg pain. Her oncologist had prescribed Methadone to alleviate the pain but Carly had an allergic reaction. Back to the drawing board!

Some good news is we are all going to Disney World in May for Carly’s Make-A-Wish. We are all pretty excited about the trip and will be there for Carly’s 5th birthday. From what we have heard it sounds absolutely wonderful! We are hoping that over the next month or so Carly will have her port-a-cath removed and her next remission check will be in 3 months. Because Carly’s cancer is so rare and she is so young everything is scheduled on a tentative basis. It’s a learning experience for everyone.

Our “Warrior Princess” is on the road to becoming a cancer survivor. She does not complain unless her pain is bad and interferes with playing and dress-up. She is an inspiration to all of us and we are very, very proud of her and her sister.

Thank you again for your support and messages of hope. You will never know how much they help…keep them coming…..and pray for peace.