We want to remind everyone that on Monday, April 21st, Tim and Kate Maul will be running for Carly on the Children’s Hospital Marathon team. Roy and I and the girls have tickets to watch the race from a special viewing area. We were given bright orange t-shirts so our runners can easily spot us in the crowd. Tim and Kate expect to be in Wellesley, our viewpoint, between 1:15 and 2:00 PM. Maybe you’ll see us on TV!!

We really don’t have a whole lot to report since our last update. Carly had a routine clinic appointment last week with her oncologist. We discussed her leg pain and when her port-a-cath might be removed. I don’t think they know quite yet when it needs to come out. Overall her leg pain has improved slightly thanks to the Neurontin she takes two times a day, however, she still needs morphine on occasion. We have an appointment with the Pain Clinic at the end of May. So for know we keep doing what we’ve been doing for the last three months.

Carly’s hair, eyebrows and eyelashes are growing back and she looks like she has a five o’clock shadow on her head. She keeps telling us it better be blonde or else. For the most part Carly seems to be getting a little stronger each day. She’s been going to preschool and playing with her friends and loving it. We are all looking forward to our trip to Disney on May 18th…. we are counting the days. Also, we are happily anticipating a visit from Kelson, Morgan, and the twins! Cousins from VA that Kelcie and Carly have never met. Carly’s next set of scans will be in June. We love hearing from everyone. Happy Easter to all!